Quality of Life and Outcomes
Tuesday, October 26, 2021: 5:00 PM-7:00 PM
Exhibit Hall (Rosen Shingle Creek)
Direct Cost Associated with Multiple Sclerosis and Important Components; A Population-Based Study 1997-2017
Amir Khakban, Msc., Faculty of Pharmaceutical Sciences, University of British Columbia;
Elisabet Rodriguez Llorian, PhD, Faculty of Pharmaceutical Sciences, University of British Columbia;
Scott B Patten, MD, PhD, University of Calgary;
Anthony L. Traboulsee, MD, The University of British Columbia;
Larry Lynd, PhD, Faculty of Pharmaceutical Sciences, University of British Columbia
Multiple Sclerosis: The Relationship of Cognitive Impairment and Self-Efficacy of Medication Management
Avtej Sethi, MS, South Shore Neurologic Associates, P.C.;
Olivia Kaczmarek, BS, South Shore Neurologic Associates;
Jack Petroski, Student, South Shore Neurologic Associates, P.C.;
Emma Malone, Student, South Shore Neurologic Associates, P.C.;
Barbara Bumstead, MS, ANCP, MSCN, South Shore Neurologic Associates, P.C.;
Marijean Buhse, NP-C, PhD, South Shore Neurologic Associates;
Myassar Zarif, MD, South Shore Neurologic Associates;
Daniel Golan, MD, Technion-Israel Institute of Technology;
Jeffrey Wilken, PhD, Washington Neuropsychology Research Group;
Mark Gudesblatt, MD, South Shore Neurologic Associates, P.C.
Assessing Presence of MS-Related Symptoms As a Proxy for Disease Severity in Multiple Sclerosis Using Administrative Claims Data
Barry Hendin, MD, Phoenix Neurological Associates, University of Arizona;
Richard A. Brook, MS, MBA, Better Health Worldwide, Inc.;
Ian A. Beren, BS, WorkPartners, LLC;
Nathan L. Kleinman, PhD, WorkPartners, LLC;
Amy L. Phillips, PharmD, EMD Serono, Inc., Rockland, MA, USA, an affiliate of Merck KGaA, Darmstadt, Germany;
Carroline Lobo, PhD, EMD Serono, Inc., Rockland, MA, USA, an affiliate of Merck KGaA
Clinical and Economic Impact of Employees Who Are Care Partners of Patients with Multiple Sclerosis
Barry Hendin, MD, University of Arizona;
Richard A. Brook, MS, MBA, Better Health Worldwide, Inc.;
Ian A. Beren, BS, WorkPartners, LLC;
Nathan L. Kleinman, PhD, WorkPartners, LLC;
Cindy Fink, BSc, Care Partner Adviser;
Amy L. Phillips, PharmD, EMD Serono, Inc., Rockland, MA, USA, an affiliate of Merck KGaA, Darmstadt, Germany;
Carroline Lobo, PhD, EMD Serono, Inc., Rockland, MA, USA, an affiliate of Merck KGaA
Assessing Patient-Reported Outcomes and Pharmacist Interventions in Multiple Sclerosis within an Integrated Care Center
Danielle Bryan, PharmD, Vanderbilt University Medical Center;
Rebekah Finley, PharmD candidate, Lipscomb University;
Autumn Zuckerman, PharmD, BCPS, AAHIVP, CSP, Vanderbilt University Medical Center;
Megan Peter, PhD, Vanderbilt University Medical Center;
Ryan Moore, MS, Vanderbilt University Medical Center;
Leena Choi, PhD, Vanderbilt University Medical Center
Integrating User Experience Improves Participant Engagement: A Co-Design Initiative in the Multiple Sclerosis Continuous Quality Improvement (MS-CQI) Improvement Research Collaborative.
Eleanor Bryan, M.Ed, Dartmouth Hitchcock Health;
Falguni Mehta, MS, MBA, Dartmouth Hitchcock Health;
Brant J. Oliver, PhD, MS, MPH, APRN-BC, Geisel School of Medicine at Dartmouth
Health and Wellness Needs Reported to Influence Quality of Life in People with Relapsing-Remitting Multiple Sclerosis, a Qualitative Investigation
Erin M Faraclas, PT, DPT, PhD(c), MSCS, Rocky Mountain University, MCPHS;
Angela Merlo, PT, DPT, PhD, Eastern Washington University;
Jeffery Lau, PT, DPT, PhD, Rocky Mountain University;
Jeff Lynn, PhD, Slippery Rock University
An Update on Participants in the Iconquerms Network.
Farren B.S. Briggs, PhD, ScM, Case Western Reserve University School of Medicine;
Nina Bozinov, MD, MS, Kootenai Clinic;
Robert N. McBurney, PhD, Accelerated Cure Project for MS;
Hollie Schmidt, MS, Accelerated Cure Project for Multiple Sclerosis;
Laura Kolaczkowski, BA, Accelerated Cure Project for MS;
Sara Loud, MSEE, MBA, Accelerated Cure Project for Multiple Sclerosis
The Relationship between Illness Intrusiveness and Walking in Persons with Multiple Sclerosis
Heather M DelMastro, MSc, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England, Frank H. Netter MD School of Medicine at Quinnipiac University;
Jennifer A. Ruiz, DPT, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England, Frank H. Netter MD School of Medicine at Quinnipiac University;
Elizabeth S Gromisch, PhD, University of Connecticut School of Medicine, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England, Frank H. Netter MD School of Medicine at Quinnipiac University
Differences in Expected Number of Clinical Management Events before and during Treatment with Sphingosine-1-Phosphate Receptor Modulators for Multiple Sclerosis
Jennifer S. Harper, PhD, MS, Janssen Pharmaceuticals, Inc.;
Nayad T. Manukian, MS, Janssen Pharmaceuticals, Inc.;
David M. Kern, PhD, Janssen Research & Development, LLC;
Smita Mitra, PhD, Janssen Pharmaceuticals, Inc.;
Alex Z. Fu, PhD, MS, Janssen Scientific Affairs, LLC;
Hoa H. Le, PhD, Janssen Scientific Affairs, LLC;
Allitia DiBernardo, MD, Janssen Pharmaceuticals, Inc.;
John J. Sheehan, Phd, RPh, Janssen Scientific Affairs, LLC
Empowering Patients through Technology to Manage and Track Symptoms of MS
Elaine Rudell, CHCP, @Point of Care;
Tarjani Agrawal, PhD, @Point of Care;
Patty Peterson, BS, Projects In Knowledge;
Andrea L. Griffin, BS, Multiple Sclerosis Association of America;
Michele Fallon Ingram, BS, @Point of Care;
James Bowen, MD, Swedish Neuroscience Institute
Virtual I Can Do It Program for Individuals with Progressed Multiple Sclerosis
Joan Augustyn, OTD, OTR/L, University of Kansas Medical Center;
McKara Shaw, OTS, University of Kansas Medical Center;
Anna Watkins, OTS, University of Kansas Medical Center;
Madeline Mason, OTS, University of Kansas Medical Center;
Justina Bayless, OTS, University of Kansas Medical Center
Perceived Health Related Quality of Life and Healthcare Resource Utilization in Persons with Multiple Sclerosis with and without Vascular Comorbidity
Lindsay O Neto, MPH, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England, Frank H. Netter MD School of Medicine at Quinnipiac University;
Jennifer A. Ruiz, DPT, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England, Frank H. Netter MD School of Medicine at Quinnipiac University;
Elizabeth S Gromisch, PhD, University of Connecticut School of Medicine, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England, Frank H. Netter MD School of Medicine at Quinnipiac University
A Real-World Study Characterizing Symptoms and Impacts of Fatigue in US Adults with Relapsing Multiple Sclerosis Using a Novel Disease Specific Scale
Lindsey Lair, MD, Janssen Research & Development, LLC;
Tiphaine Lévy-Heidmann, MSc, Carenity;
Valentin Morisseau, MSc, Carenity;
Carol Jamieson, BSc, Janssen Research & Development, LLC;
Leigh E Charvet, PhD, NYU Langone Health;
Lauren B. Krupp, MD, New York University Langone Medical Center;
Marion Azoulai, MSc, Carenity
Telehealth Utilization and Clinical Outcomes in Four MS Centers during the COVID Pandemic: Real-World Evidence from the MS-Cqi Improvement Research Collaborative.
Matthew Molaei, PharmD, Thomas Jefferson University;
Anna Chen, PharmD, Thomas Jefferson University;
Anna Vaeth, BS, Massachusetts General Hospital; Harvard Medical School;
Karen Walsh, MS, MBA, Thomas Jefferson University;
Brant J. Oliver, PhD, MS, MPH, APRN-BC, Geisel School of Medicine at Dartmouth
Evaluating the Impact of Fatigue Symptoms on Work Productivity and Activity Impairment Using Longitudinal Data from the Phase III Optimum Study
Alex Keenan, MS, Janssen Pharmaceuticals;
Hoa Le, PhD, Janssen Pharmaceuticals;
Christopher Pelligra, PhD, Evidera;
Ibrahim Turkoz, PhD, Janssen Research & Development;
Shien Guo, PhD, Evidera;
Weiqin Liao, PhD, Evidera;
Michele Cole, PharmD, MS, Janssen Pharmaceuticals
Assessing the Impact of Disease Activity and Fatigue Symptom on Work Productivity and Activity Impairment in Patients with Relapsing Multiple Sclerosis
Michele Cole, PharmD, MS, Janssen Pharmaceuticals;
Alexander J. Keenan, MA, MHP, Janssen Research & Development;
Hoa Le, PhD, Janssen Pharmaceuticals;
Christopher Pelligra, PhD, Evidera;
Shien Guo, PhD, Evidera;
Weiqin Liao, PhD, Evidera
Improving Communication about Multiple Sclerosis: The MS-Support Decision Aid
Nananda Col, MD, MPH., MPP, FACP, Shared Decision Making Resources;
Christina Fitzpatrick, MA, Shared Decision Making Resources;
Enrique Alvarez, MD, University of Colorado;
Lori Pbert, PhD, University of Massachusetts Medical School;
Carolina Ionete, MD, PhD, University of Massachusetts Memorial Medical Center;
Idanis Berrios Morales, MD, University of Massachusetts Medical Center;
Andrew J. Solomon, MD, Neurological Sciences, Larner College of Medicine at the University of Vermont;
Christen Kutz, PhD, PA-C, Colorado Springs Neurological Associates;
Terrie Livingston, PharmD, EMD Serono, Inc., an affiliate of Merck KGaA;
Jennifer Chester, FNP-BC, MSCN, Kansas City MS Center at College Park Specialty;
Crystal Iwuchukwu, RN, BSN, FNP, Southeast Health;
Long Ngo, MD, Beth Israel Deaconess Medical Center
Multiple Sclerosis, Cognition and the Ability to Participate in Social Roles and Activities: Disease Impact Beyond Physical Disability
Olivia Kaczmarek, BS, South Shore Neurologic Associates;
Jack Petroski, Student, South Shore Neurologic Associates, P.C.;
Colette Kodym, Student, South Shore Neurologic Associates, P.C.;
Avtej Sethi, MS, South Shore Neurologic Associates, P.C.;
Barbara Bumstead, MS, ANCP, MSCN, South Shore Neurologic Associates, P.C.;
Marijean Buhse, NP-C, PhD, Stony Brook University, South Shore Neurologic Associates;
Myassar Zarif, MD, South Shore Neurologic Associates;
Daniel Golan, MD, Technion-Israel Institute of Technology;
Jeffrey Wilken, PhD, Washington Neuropsychology Research Group;
Mark Gudesblatt, MD, South Shore Neurologic Associates, P.C.
Multiple Sclerosis and the Ability to Participate in Social Roles and Activities: Disease Impact Beyond Physical Disability
Olivia Kaczmarek, BS, South Shore Neurologic Associates;
Ellie Teng, Student, South Shore Neurologic Associates, P.C.;
Fatima Khan, Student, South Shore Neurologic Associates, P.C.;
Avtej Sethi, MS, South Shore Neurologic Associates, P.C.;
Barbara Bumstead, MS, ANCP, MSCN, South Shore Neurologic Associates, P.C.;
Marijean Buhse, NP-C, PhD, South Shore Neurologic Associates;
Myassar Zarif, MD, South Shore Neurologic Associates;
Daniel Golan, MD, Technion-Israel Institute of Technology;
Jeffrey Wilken, PhD, Washington Neuropsychology Research Group;
Mark Gudesblatt, MD, South Shore Neurologic Associates, P.C.
Characterizing Activities of Daily Living in MS Patients with Processing Speed Scores Above and below a Threshold Previously Shown to Predict Employment Status
Ralph H.B. Benedict, PhD, University at Buffalo;
Arman Altincatal, MS, Biogen;
Enrique Alvarez, MD, PhD, MSCI, University of Colorado;
Deborah Backus, PT, PhD, Shepherd Center;
Martin Belkin, DO, Michigan Institute for Neuro Disorders;
Sophie Cleanthous, PhD, Modus Outcomes;
Joanna Cooper, MD, East Bay Neurology;
Jessica Craddock, MD, Providence Sacred Heart Medical Center - Spokane;
Carl de Moor, PhD, Biogen;
Emma Elliott, BSc, Modus Outcomes;
John Foley, MD, Rocky Mountain MS Clinic;
Mehul Jhaveri, PharmD, MPH, Biogen;
Gabriel Pardo, MD, FAAN, Oklahoma Medical Research Foundation;
Christopher Perrone, MD, Oklahoma Medical Research Foundation;
Pavle Repovic, MD, PhD, Multiple Sclerosis Center, Swedish Neuroscience Institute;
Marvin Rock, -, Biogen;
Suma Shah, MD, Duke University;
Barry A Singer, MD, Barnes Jewish Hospital;
Jacob A Sloane, MD PhD, Beth Israel Deaconess Medical Center;
Kyle E. Smoot, MD, Providence Multiple Sclerosis Center, Providence Brain and Spine Institute;
Carlo Tornatore, MD, Medstar Georgetown University Hospital;
Bianca Weinstock-Goodman, MD, University of Buffalo;
Irene Koulinska, MD, ScD, Biogen
A Coach Supported Standardized Approach for Quality Improvement (QI) in the Multiple Sclerosis Continuous Quality Improvement (MS-CQI) Research Collaborative.
Randall S Messier, MT, MSA, PCMH CCE, RandyMessierLLC;
Falguni Mehta, MS, MBA, Dartmouth Hitchcock Health;
Brant J. Oliver, PhD, MS, MPH, APRN-BC, Geisel School of Medicine at Dartmouth
Trends in Absence Time and Payments Due to Long- and Short-Term Disability and Workers' Compensation for Employees with Multiple Sclerosis
Richard A. Brook, MS, MBA, Better Health Worldwide, Inc.;
Nathan L. Kleinman, PhD, WorkPartners, LLC;
Ian A. Beren, BS, WorkPartners, LLC
The Importance of Specialty Pharmacy Services in Multiple Sclerosis Patient Care
Roma Amin, PharmD, BCACP, Johns Hopkins Homecare Group;
LaTasha Riddick, PharmD, BCACP, Johns Hopkins Homecare Group;
Amy Nathanson, PharmD, BCACP, Johns Hopkins Homecare Group;
Scott D. Newsome, DO, MSCS, FAAN, FANA, Johns Hopkins University School of Medicine
Understanding MS Symptoms and Impacts through Semi-Structured Interviews with Clinical Experts and People Living with MS
Susanne Clinch, PhD, Roche Products Limited;
Fiona McDougall, PhD, Genentech, Inc.;
Amy Barrett, MSPH, MA, RTI Health Solutions, Research Triangle Park;
Oyebimpe Olayinka-Amao, PharmD, MPH, RTI Health Solutions, Research Triangle Park;
Licinio Craveiro, MD, MSc, PhD, F. Hoffmann-La Roche Ltd;
Mike Baker, BSc, MSc, F. Hoffmann-La Roche Ltd;
Michael Lindemann, MD, PhD, F. Hoffmann-La Roche Ltd
Adherence to Oral Disease Modifying Therapies in Clinical Practice and Patient-Centered Outcomes
Suzanne Croll, BSc, Henry Ford Hospital;
Omar M Said, BS, Wayne State University, Henry Ford Hospital;
Marta Zholobetska, BS, Henry Ford Hospital;
Lonni Schultz, PhD, Henry Ford Health System;
Mirela Cerghet, MD, PhD, Wayne State University
Patient-Reported Outcome Measures in Multiple Sclerosis Clinical Trials: Critical Assessment and Insights from People Living with Multiple Sclerosis
Trishna Bharadia, BA (Hons), N/A;
Tanuja Chitnis, MD, Brigham and Women's Hospital, Department of Neurology;
Piet Eelen, RN MSc, National Multiple Sclerosis Center of Melsbroek;
Birgit Bauer, ., Manufaktur für Antworten (UG);
Giampaolo Brichetto, MD, PhD, Associazione Italiana Sclerosi Multipla Rehabilitation Center;
Andrew Lloyd, DPhil, Acaster Lloyd Consulting Ltd;
Hollie Schmidt, MS, Accelerated Cure Project for Multiple Sclerosis;
Miriam King, BA (Hons), Novartis Pharma AG;
Jenny Fitzgerald, BSc, Novartis Pharma AG;
Thomas Hach, MD, Novartis Pharma AG;
Jo Vandercappellen, PhD, MBA, Novartis Pharma AG;
Jeremy Hobart, BSc, PhD, Peninsula Schools of Medicine and Dentistry, University of Plymouth
Effects, Tolerance, and Response to COVID-19 Vaccines in Hispanic Puerto Rican Patients with Multiple Sclerosis
Viviana Martínez-Maldonado, BS, San Juan MS Center;
Ramon J Vega-Corteguera, BS, San Juan MS Center;
Paulina Díaz de la Matta, MA, Universidad Central del Caribe;
Ivonne Vicente, MD, San Juan MS Center;
Angel Chinea, MD, San Juan MS Center
Understanding Health and Well-Being of Women with MS: Implications for Health Care Providers
Jennifer L Howard, PhD(c)., RN, Memorial University of Newfoundland;
Yolanda Babenko-Mould, PhD, RN, Western University;
Kimberley Jackson, PhD, RN, Western University;
Tracy Smith-Carrier, PhD, RSW, King's University College at Western University
Multiple Sclerosis Specialist Nurse Care: Patterns of Access and Impact on Health Outcomes
Belinda Bardsley, RN BN MSCN Dip Management, Austin Health, MS Nurses Australasia Incorporated;
Therese V Burke, PhD RN CNC, MS Research Australia;
Jing Chen, PhD, Menzies Institute for Medical Research, University of Tasmania;
Bruce Taylor, MD FRACP, Menzies Institute for Medical Research, University of Tasmania;
Sue Shapland, RN BN MSCN, MSWA;
Ingrid van der Mei, PhD, Menzies Institute for Medical Research, University of Tasmania
