QL
Quality of Life Outcomes
Thursday, May 25, 2017: 6:15 PM-8:15 PM
B2 (New Orleans Convention Center)
Evaluation of Sexual Dysfunctions in Men with Multiple Sclerosis
Alessa Machado Sr., doctor, Brazilian Association of Multiple Sclerosis;
Ana M Canzonieri Sr., Phd, Brazilian Association of Multiple Sclerosis;
Lucas F.R dos Santos Sr., student, ABEM . Brazilian Association Multiple Sclerosis;
Ana M Canzonieri Sr., Phd, Brazilian Association of Multiple Sclerosis
PR MS Registry: MS Disability Survey
Angel Chinea, MD, San Juan Multiple Sclerosis Center;
Ivonne Vicente, MD, San Juan Multiple Sclerosis Center;
Cristina M Rubi, BS, San Juan Multiple Sclerosis Center;
Guillermo G Garcia, BS, San Juan MS Center;
Astrid Diaz, BS, San Juan MS Center;
Ana Rivera, BS, San Juan MS Center;
Natalia Hernandez, BS, San Juan MS Center;
Angel Chinea, MD, San Juan Multiple Sclerosis Center
Outcomes in the African-American Subpopulation from the Phase 4 Teri-PRO Study of Teriflunomide
Annette Okai, MD, Multiple Sclerosis Treatment Center of Dallas;
Bhupendra Khatri, MD, The Regional MS Center, Center for Neurological Disorders at Wheaton Franciscan Healthcare;
Keith R Edwards, MD, Multiple Sclerosis Center of Northeastern New York;
Steve Cavalier, MD, Sanofi Genzyme;
Pascal Rufi, MD, Sanofi Genzyme;
Soman Chowdhury, MSc, Cytel Statistical Software and Services;
Myriam Benamor, MD, Sanofi;
Ralf Gold, MD, St Josef Hospital, Ruhr University Bochum;
Patricia K Coyle, MD, Stony Brook University;
Heather St Michael, BSc, Fishawack
What 60,000 People with MS Are Saying about MS DMTs, and What It Tells Us about Opportunities to Improve MS Care
Terrie Livingston, PharmD, Biogen Idec;
Eric Peacock, CEO, MyHealthTeams;
Beth Schneider, Research Director, MyHealthTeams;
Beth Schneider, Research Director, MyHealthTeams
What Matters in MS - a Quantitative Survey of People Living with MS
Terrie Livingston, PharmD, Biogen Idec;
Eric Peacock, CEO, MyHealthTeams;
Beth Schneider, Research Director, MyHealthTeams;
Heather Lapidus Glassner, Research Director, MyHealthTeams;
Beth Schneider, Research Director, MyHealthTeams
Patient-Reported Outcomes Are the Strongest Predictors of Disability Progression in Intramuscular Interferon Beta-1a Users in the NYS MS Consortium
Bianca Weinstock-Guttman, MD, University at Buffalo;
Caila B Vaughn, PhD, MPH, University at Buffalo;
Katelyn S. Kavak, MS, Jacobs MS Center for Treatment and Research;
Shulian Shang, PhD, Biogen;
Crystal Watson, MS, Biogen;
Caila B Vaughn, PhD, MPH, University at Buffalo
A New Machine Learning Approach to Predict Disease Course in Multiple Sclerosis
Giampaolo Brichetto, MD, PhD, Italian MS Society, Genoa, Italy;
Samuele Fiorini, PhD, University of Genoa;
Michela Ponzio, PhD, Italian MS Society, Genoa, Italy;
Annalisa Barla, PhD, University of Genoa;
Alessandro Verri, PhD, University of Genoa;
Andrea Tacchino, PhD, Italian MS Society, Genoa, Italy;
Andrea Tacchino, PhD, Italian MS Society, Genoa, Italy
The Association of Tremor and Clinical Measures in Persons with Multiple Sclerosis Utilizing the Movalyzer® Software
Heather M Hawks, MS, Mount Sinai Rehabilitation Hospital;
Elizabeth W. Triche, PhD, Brown University;
Jennifer A. Ruiz, DPT, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England;
Kayla M. Olson, MA, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England;
Albert C. Lo, MD, PhD, Mount Sinai Rehabilitation Hospital, Trinity Health Of New England;
Heather M Hawks, MS, Mount Sinai Rehabilitation Hospital
Integrating the Patient Voice into Continuing Medical Education Results in Improved Clinician Knowledge and Performance in Multiple Sclerosis
Jamie Reiter, PhD, CME Outfitters, LLC;
Jan Perez, BS, CME Outfitters, LLC;
Sharon Tordoff, BS, CME Outfitters, LLC;
Whitney Faler, MPA, CME Outfitters, LLC;
Jamie Reiter, PhD, CME Outfitters, LLC
Patient-Reported Treatment Satisfaction in Treatment-Naive and -Experienced RRMS Patients Receiving Oral Disease-Modifying Therapies
Julia Morawski, MSc, Sanofi Genzyme;
Fred Cox, PhD, Sanofi Genzyme;
Soman Chowdhury, MSc, Cytel Statistical Software and Services;
Karthinathan Thangavelu, PhD, Sanofi Genzyme;
Heather St Michael, BSc, Fishawack
Understanding Concepts Important to Natalizumab Patients: A Qualitative Interview Study
Margaret Cho, MPH, ICON;
Ellen S Lathi, MD, MS Center at St. ElizabethÂ’s;
John Foley, MD, Rocky Mountain MS Research Group;
Ben W Thrower, MD, Shepherd Center;
Vivien Ong, MPH, ICON;
Kellee Howard, MA, MSc, ICON;
Huan Wang, BS, BA, ICON;
Jie Ting, PhD, MSPH, Biogen;
Crystal Watson, MS, Biogen;
Sarah Naoshy, MPH, Biogen;
Margaret Cho, MPH, ICON
Correlating Blindness with Patient Reported Outcomes, Demographics, and Performance in Nmo
Mary R Rensel, MD, FAAN, Cleveland Clinic;
Hong Li, MS, Cleveland Clinic;
Meagen Seay, DO, Cleveland Clinic;
Aylin Onay, BS, Hacettepe Üniversitesi;
Mary R Rensel, MD, FAAN, Cleveland Clinic
A Five-Year Study Evaluating Hand Grip Strength As an Assessment Tool for Multiple Sclerosis Disease Progression
Meghan C Romba, MD, Johns Hopkins Hospital;
Kathryn Fitzgerald, ScD, Johns Hopkins Hospital;
Moira Baynes, RN, Johns Hopkins University;
Peter A Calabresi, MD, Johns Hopkins University;
Kathleen M Zackowski, PhD, OT, Johns Hopkins University;
Meghan C Romba, MD, Johns Hopkins Hospital
Can Presenting Symptoms be Associated with Long-Term Disease Severity in Patients with MS
Padma Priya Puttagunta, MD, LA Biomed;
Jason Ledesma, BS, LA BIOMED;
Kristen Berube, BS, LA Biomed;
Bijal Mehta, MD, MPH, Harbor-UCLA Medical Center;
Padma Priya Puttagunta, MD, LA Biomed
The Association Between Digitally Assessed Patient-Reported Outcomes and In-Clinic Assessments in the FLOODLIGHT Study in Multiple Sclerosis
Patricia Mulero, MD, Multiple Sclerosis Center of Catalonia, Hospital Vall d'Hebron University;
Luciana Midaglia, MD, Multiple Sclerosis Center of Catalonia, Hospital Vall d'Hebron University;
Xavier Montalban, MD, PhD, Vall d'Hebron University Hospital;
Jennifer Graves, MD, PhD, MAS, UC San Francisco;
Stephen L Hauser, MD, University of California, San Francisco;
Laura Julian, PhD, Genentech, Inc.;
Mike Baker, BSc, MSc, F. Hoffmann-La Roche Ltd;
Jan Schadrack, MD, F. Hoffmann-La Roche Ltd;
Christian Gossens, PhD, MBA, F. Hoffmann-La Roche Ltd;
Fiona Mc Dougall, PhD, ClinPsyD, Roche Products Limited;
Alf Scotland, MSc, F. Hoffmann-La Roche Ltd;
Yang-Ping Zhang Schaerer, PhD, F. Hoffmann-La Roche Ltd;
Andrew Creagh, BA, BAI, MAI, F. Hoffmann-La Roche Ltd;
Shibeshih Belachew, MD, PhD, F. Hoffmann-La Roche Ltd;
Michael Lindemann, MD, PhD, F. Hoffmann-La Roche Ltd;
Patricia Mulero, MD, Multiple Sclerosis Center of Catalonia, Hospital Vall d'Hebron University
Impact of Betaconnect Auto-Injector on Patient Adherence of Betaseron Therapy
Mark Rametta, D.O., FACOI, FACP, Bayer HealthCare Pharmaceuticals;
Rebecca Germino, MA, Bayer Healthcare Pharmaceuticals;
Kim Mcleod, MPH, Xcenda, LLC;
Melissa McCart, PharmD, MS, Xcenda, LLC;
Apryl Quillen, MS, Xcenda, LLC;
Melissa McCart, PharmD, MS, Xcenda, LLC
Factors Correlating with Patient-Reported Measurements of Stigma and Satisfaction with Social Roles and Activities Reported By the Iconquerms Network
Robert N. McBurney, PhD, Accelerated Cure Project for MS;
Yibai Zhao, MS, University of Massachusetts, Amherst;
Hollie Schmidt, MS, Accelerated Cure Project for MS;
Sara Loud, MSEE, MBA, Accelerated Cure Project for MS;
Laura Kolaczkowski, BA, iConquerMS Patient-Powered Research Network;
Raji Balasubramanian, Sc.D., University of Massachusetts, Amherst;
Robert N. McBurney, PhD, Accelerated Cure Project for MS
Effects of Group Cognitive Behavioral Therapy for Insomnia on Insomnia, Depression, and Fatigue in Individuals with Multiple Sclerosis
Samantha Domingo, Psy.D., Cleveland Clinic;
Michelle Drerup, Psy.D., C.BSM, Cleveland Clinic;
Amy B. Sullivan, Psy.D., Cleveland Clinic Foundation;
Samantha Domingo, Psy.D., Cleveland Clinic
Evaluating Patient-Reported Outcomes in a Real-World Setting with Alemtuzumab in Relapsing MS Patients Discontinuing a Prior Dmt: PRO-ACT Study Design
Sibyl Wray, MD, Hope Neurology MS Center;
Samuel F Hunter, MD, PhD, Advanced Neurosciences Institute;
Jacqueline A. Nicholas, MD, MPH, OhioHealth Multiple Sclerosis Center;
Tamara A Miller, MD, Advanced Neurology of Colorado;
Jinjun Liang, MD, Sanofi;
Camille Martinet, N/A, Sanofi;
Mary-Jean Fanelli, MD, MBA, Sanofi Genzyme;
Laura Saltonstall, MD, MBA, Sanofi Genzyme
Risk Tolerance to Multiple Sclerosis Therapies: Results from the Narcoms Survey
Sneha Natarajan, PhD, Cleveland Clinic;
Robert J Fox, MD, Cleveland Clinic;
Carol Cosenza, MSW, University of Massachusetts, Boston;
Lauren Cripps, MA, University of Massachusetts, Boston;
Gary Cutter, PhD, University of Alabama at Birmingham;
Paul Ford, Ph.D., Cleveland Clinic;
MaryBeth Mercer, MPH, Cleveland Clinic;
Amber Salter, PhD, Washington University in St. Louis;
Tuula Tyry, PhD, Dignity Health, St. Joseph's Hospital and Medical Center;
Stacey S Cofield, PhD, University of Alabama at Birmingham;
Sneha Natarajan, PhD, Cleveland Clinic
Patient-Centric Care in Primary Progressive Multiple Sclerosis: Importance of Factors Beyond Traditional Clinical Endpoints
Suepattra May, PhD, MPH, Precision Health Economics;
Caroline Huber, MPH, Precision Health Economics;
Mark Embrett, PhD, Precision Health Economics;
Supriya K Yagnik, MPH, Genentech Inc.;
Sarah Donelson, MA, Genentech Inc.;
Jennifer Whiteley, EdD MSc, MA, Genentech Inc.;
Mikele Bunce, MPH, PhD, FACHE, Genentech Inc.;
Laura Julian, PhD, Genentech, Inc.;
Lawrence Steinman, MD, Stanford University School of Medicine;
Suepattra May, PhD, MPH, Precision Health Economics
Relationship Between Sleep, Fatigue and Depression in Pediatric Multiple Sclerosis
Tara Berenbaum, BSc, The Hospital for Sick Children;
Stephanie A Grover, MSc, CCRP, The Hospital for Sick Children;
Samantha Stephens, PhD, The Hospital for Sick Children;
Shelly Weiss, MD, FRCPC, The Hospital for Sick Children;
Indra Narang, MEDSCI, MBBCH, FRCPCH, MD, The Hospital for Sick Children;
E. Ann Yeh, MD, MA, FRCPC, Dip ABPN, The Hospital for Sick Children;
Tara Berenbaum, BSc, The Hospital for Sick Children
Symptom Clusters and Social Support: Predicting Health Promotion and Quality of Life of Older Adults with Longstanding Multiple Sclerosis
Wenhui Zhang, BSN, The University of Texas at Austin;
Heather Becker, PhD, Research Scientist, The University of Texas at Austin;
Alexa Stuifbergen, PhD, RN, FAAN, Dean, The University of Texas at Austin;
Adama Brown, PhD, Research Scientist, The University of Texas at Austin;
Wenhui Zhang, BSN, The University of Texas at Austin
